I'm Dying to Tell You
Dettagli canale
I'm Dying to Tell You
Hi, I’m Lorri. I’m dying from ALS, a fatal disease with no cure. I’ve been encouraged by so much to keep LIVING this life and stay focused on the positive. I created this podcast to find & share stories of inspiration in hopes of inspiring you. I'm offering an opportunity for you to continue the...
Episodi recenti
113 episodi
Happy Hour with Her ALS Story and "Hop" of Zac Brown Band
In this Happy Hour Chat, I talk with Tina Cascio, Mira Hudson and Kelly McGinn, all young women who share their journey living with ALS after being di...
Supermilk's Jake Popyura: Navigating ALS with Humor & Music
This episode follows the powerful and unexpectedly uplifting story of Jake Popyura, a musician and multi-instrumentalist in the indie rock band Superm...
Life After ALS: A Journey of Healing and Hope
The emotional aftermath of losing someone to ALS is a journey rarely discussed but vitally important to understand. Caroline, Jill, Jenny, and Deb—fou...
Love, Legacy & Lou Gehrig Day: A Team Effort Against ALS
In this heartfelt episode, we meet the individuals behind Always Lifting Spirits, Chair Force 1 Foundation, Operation Ramp It Up, Que4Care and the Cin...
Elin Adcock - Her Journey Facing ALS and FTD Together
Here, Elin Adcock shares her powerful journey through her husband’s ALS and frontotemporal dementia (FTD) diagnoses—and how she’s now leading the char...
Questions About ALS? There's an App for That: Roon!
When faced with an ALS diagnosis, finding trustworthy information shouldn't add to your burden. This episode introduces a groundbreaking solution born...
Carrying an ALS Gene: Mindy Uhrlaub’s Story of Hope & Action
What happens when you learn that your DNA carries the same mutation that led to a loved one’s battle with ALS? In this episode, I sit down with Mindy...
I AM ALS Turns 6: Community Teams Inspiring Change
Welcome to "I'm Dying to Tell You," where we shine a light on resilience and hope. In this special episode, we’re celebrating six years of I AM ALS,...
Fashion, HOPE, ALS Reversals: All with Dr. Richard Bedlack
Here I chat with Dr. Richard Bedlack, a neurologist known not only for his relentless ALS research but also for his unique style. This episode unfolds...
Facing ALS with Resilience: Johnny Rodriguez's Inspiring Journey
Imagine facing a life-changing ALS diagnosis and tackling it with resilience and positivity. That’s what Johnny Rodriguez, a 35-year-old high school l...
"Clayton Rakes" - Two Siblings’ Mission to Honor Their Dad and Fight ALS
What if two young siblings could inspire an entire community to rally against a devastating disease? Brady and Brooklyn Yozwiak from Hudson, Ohio, are...
Animated Film, LUKi & the Lights: Helping Children Understand ALS/MND
"LUKi and the Lights" is not just an animated short film; it's a beacon for children trying to grasp the complexities of ALS. Inspired by the real-lif...
Episode 100: A Chat with 100-Year-Old Mildred Kirschenbaum
To celebrate Episode 100 of this podcast, here I chat with 100-year-old Mildred Kirschenbaum. Mildred has become a social media star and is happily s...
Broadway's Aaron Lazar on Making the Impossible, Possible ... Even with ALS
In this conversation, Aaron Lazar shares how he discovered a new life purpose after being diagnosed with a terminal illness, ALS. Aaron has been in t...
Zac Brown Band's John Driskell Hopkins: An Update on ALS, Life and Music
Grateful to catch up with John Driskell Hopkins (Hop) again to see how he’s doing with his ALS diagnosis. About 2.5 years after being told he had ALS...
Goode and Faithful Servant: A Chat with Kerry Goode
So grateful to have this conversation with Kerry Goode, former NFL (National Football League) player who was diagnosed with ALS in 2015. Kerry was a...
Could it be ALS? - Bob Scannell on ALS Misdiagnosis
In this episode, I sit down with ALS advocate Bob Scannell, whose personal journey through his wife's battle with ALS has fueled his mission to raise...
“Staying Loudly” - Sam’s Positive Mindset with ALS
Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.
37-year-old Sara Bennett: Life, Death & Parenting with ALS
In this episode of ""I'm Dying To Tell You,"" I meet up with the resilient Sara Bennett, from Columbus, Ohio. At just 36 years old, Sara was confron...
LOVE & SUPPORT from ALS Family of Faith
In the first episode of Season 5, I delve into the inspiring outreach of ALS Family of Faith with guests Dawn Delaloye and Tanya Hageman. Listen in as...
20 Years Living with ALS: A Special Q&A with My Sons Co-Hosting
When I was initially diagnosed with ALS, I was given the typical prognosis of 2-5 years to live. That was 20 years ago. Today, alongside my two sons,...
Rebuilding Together After ALS Loss: Juliet Taylor & Tim Abeska
In this episode I chat with Juliet Taylor & Tim Abeska who each lost spouse to ALS. They met in a virtual support group for widow & widowers. Realiz...
Community Building Amidst ALS: Karen (thekaregiver) & Tony Vick
Here you’ll meet Tony and Karen Vick. Tony, a brave U.S. Veteran, has been living with ALS for the past 6 years. Karen, his dedicated wife, serves a...
How to Find Gratitude During Hard Times
In this episode, I talk about having gratitude even during hard times. I recorded this on Thanksgiving Day. Thanksgiving encourages us to pause and...
Amanda Stevens: Wife, Mom, Caregiver & Founder of AxeALS
Here I chat with Amanda Stevens, wife & caregiver to Eric Stevens – former NFL player & L.A. Firefighter, both introduced to us on The Ellen DeGeneres...
Teen Actor Lance Alexander: "From Junk to Hunk"
In this episode I talk to Lance Alexander, a teen Hollywood actor from my hometown in Ohio. You might know Lance from his role as Elvis, a recurring...
Radio Legend Jim Scott: Living Positively with ALS
Here my husband Paul & I talk to long-time radio personality Jim Scott from Cincinnati. He has been heard all over the country during his 55+ years o...
Military Veteran Kate Peters Battling the Enemy: ALS
Here I chat with military veteran of both the U.S. Marine Corps and the U.S. Navy, Kate Peters. She served in the USMC 2007-2015, USN 2015-2020 and s...
"Hope Fights Back" - Andrea Peet & Meredith Atwood
Here I chat with a young woman living with ALS, who defies all odds by finishing fifty marathons and, in turn, inspires people to “go on, be brave.” I...
"Ask Me Anything" - Host Q & A on Life, Outlook & My Terminal Illness
This episode is just me answering YOUR questions. I had a lot of requests for this format again, so I asked listeners to send in questions about anyt...
Tackling Tough Conversations About ALS (Part 2/2)
Here I continue my talk with Amy, Jim and Matt who are living with ALS about having the toughest conversations of their lives. When you’re living wit...
Tackling Tough Conversations About ALS (Part 1/2)
When you’re living with a terminal illness that doesn’t have a cure and typically gives you just a few years to live, like ALS, the most difficult con...
Power of Positivity with Child Abuse Survivor, Courtney Cirabisi
In this episode you'll hear my chat with Courtney Cirabisi, a 30 year old who lives in Bakersfield, California. She became reliant on a wheelchair fo...
Q&A: Young Adults Living with ALS (Part 2/2)
May is ALS Awareness month. So in the spirit of increasing awareness of ALS, a terminal illness with no cure, I continue my chat with 3 others living...
Q&A: Young Adults Living with ALS (Part1/2)
In this special Q&A episode, 3 young adults answer questions you sent in about ALS and living with a terminal illness. May is ALS Awareness month. S...
"The Wisdom of Morrie" with His Son Rob Schwartz
On this episode of I'm Dying To Tell You Podcast, I talk to Rob Schwartz son of Morrie Schwartz from the classic book Tuesdays with Morrie. We chat...
Zac Brown Band's John Driskell Hopkins & His Battle with ALS
Here I sit down with Zac Brown Band founding member, John Driskell Hopkins who is using his stage to help bring awareness to ALS, also known as Lou G...
Fighting ALS with Humor: Brooke Eby
Here I talk to 34 year old TikToker, Brooke Eby who is using humor and social media to navigate life after being diagnosed with a fatal disease. Broo...
John Carthum: Outliving ALS By 27 Years
Here I talk to someone who has ALS for over 25 years. I reconnect with a former colleague from Kraft Nabisco, John Carthum. It was a few decades ag...
"Sometimes I Shake" - An Inspirational Tale on Living Fully
Here I chat with award-winning director/producer, Jared Callahan. He shares the inspiration behind the film, SOMETIMES I SHAKE. The documentary film...